Living with OCD

Cayla, a mom with OCD, shares how she and her 12-year-old daughter, Serenity, have navigated their OCD diagnoses. Through NOCD, they found support, online

In a study on the effectiveness of video teletherapy treating children and teens with OCD, 2,173 participants showed nearly 40% reduction of symptoms

In a recent episode of SNL, we saw OCD once again treated as a made-up issue, instead of the serious mental health condition that it is.  Dave

Exposure and response prevention (ERP) therapy is the most effective form of treatment for OCD, because it teaches your brain new ways to respond to—and

Nicole Rafiee, 25, has struggled with her mental health for as long as she can remember—often attributing her anxiety to high-stress events, such as her

The defining symptoms of obsessive-compulsive disorder (OCD) are the same across all ages, but the unique experiences of adolescence may affect how the

Exercise can help reduce symptoms of obsessive-compulsive disorder (OCD) but it works best when combined with evidence-based treatments like exposure and

Obsessive-compulsive disorder (OCD) is most effectively treated with exposure and response prevention (ERP) therapy—a form of cognitive behavioral therapy

Tracie Ibrahim, Chief Compliance Officer at NOCD, shares her personal story with OCD, and how it informs her work now. After years of misdiagnoses and

Obsessive-compulsive disorder (OCD) is a complex mental health condition that can have a devastating impact. The disorder’s core symptoms—unwanted

OCD wants you to doubt yourself and isolate yourself so that you interact with your intrusive thoughts, obsessions, and compulsions to keep feeding them and make them stronger and stronger.  Recognizing that is what your OCD is doing and trying to break the cycle, not once, but repeatedly is the hardest part. This is not something that I recommend that you should try to do alone. I was stuck on the hamster wheel of doubt and rumination and had been pulling farther and farther away from my friends and family, choosing to withdraw into my shell and distance myself from those I cared about the most. I was embarrassed. I didn’t know what was happening. Until I found NOCD. That is when things changed.

I want other people to understand OCD better, that it isn’t a fun quirk like it’s often shown in TV shows. It’s exhausting and time-consuming and it can break you and lock you into its invisible cage. Healing requires a lot of patience. You will fall and you’re going to get back up again. You will take one step forward, only to take two steps back. And that’s okay. It’s a part of the whole healing journey. But there is a way out. You can get better. The storm will pass. And even though it will still rain from time to time, you can learn how to keep living your life. 

Starting around age 9 is when this thing became noticeable in my life. I would do such things as make sure that I never walked around an obstacle without walking back around it in reverse order (e.g. If I walked a lap around my house, I would do a subsequent lap in the reverse direction, as if I were untangling an invisible bungee cord that was attached to me during that first lap.) I would ritualistically perform tasks, whether these tasks were mundane or significant, a specific number of times (e.g. If I inadvertently touched or grazed the dining-room table while walking past it, I would then go back and touch it again a given number more times so as to have a nice even number of touches, before moving on.) 

One key tactic I learned in ERP was to live your values. These past few years really put me in an identity crisis and made me forget who I really was as a human being. During the ERP sessions, I am often reminded to move toward my values even when uncertainty strikes. I started to think about what I like to do and how I like to live my life. Bit by bit I learn more about myself and my desires in this world. 

OCD had Gabe feeling like he was living in a dark cave. A cave of despair and uncertainty. Until he found NOCD. For the first time, I felt like what I had been struggling with was understandable and shared by others, and the conversation gave me hope that with a scientific treatment methodology, there was a way out, a way to leave behind the cave and step into my life. The recovery journey wasn’t easy, and many parts of ERP were incredibly frustrating, but looking back, a year after having started this journey with NOCD I couldn’t be more grateful.

My mom used to say “what's the value of money if you're not going to spend it to live life to the fullest?” This sticks with me, it is so true, especially as a metaphor for living with OCD. Living life to the fullest is about not letting OCD control what I do. It’s about me being in the driver's seat and taking back the control that OCD tries to take. I have decided to live my life to the fullest and move toward my values, not my fears. 

Prior to being diagnosed with OCD, I had remained silent about that part of me. I simply didn’t understand it. I wanted to figure out everything first, on my own. Ironically I wanted to solve the problem before I asked for help. Analyzing is what I do, it's who I am. I didn’t like experiencing anxiety and uncertainty. I have always been very self-aware. I knew early on that the diagnoses didn’t fit everything I was going through. At the same time, this only played into more OCD fears.

I had a truly life-changing experience with NOCD and my therapist, Jessica. I’m happy to say just a few months ago, I was successfully discharged from therapy with her. Jessica was a lifesaver and was a perfect fit for me. When I started, it felt like ERP and the goals I set with her were unattainable, but I can say with certainty that it is doable and worth the hard work.

I was always outgoing, and friendly, not someone you would think struggles with anxiety or perfectionism. I was social and had a lot of friends. I made it through my school years pretty easily. It wasn’t until I started college that I started to struggle. I have since learned that this is a common time in an individual’s life when OCD either presents itself or worsens. It was my first time on my own, away from the familiarity of family and friends. I felt trapped like I couldn’t escape from it. Everywhere I turned there were intrusive thoughts and feelings. I couldn’t explain what I was experiencing to anyone, at least that is how it felt at that time. 

The OCD community needs to come together to talk more openly about taboo themes. These themes are far more common than anyone realizes and people are suffering in silence. Hearing others talk about their experiences can save lives. I wish my 13-year-old self could have learned about it sooner. I wish she could have been a part of the OCD community that I have today.